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The Life of Riley's

Our journey with Friedreichs Ataxia

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Author: lifeofrileysfa

“Pretty good odds” to prevent the one armed man.

Hi! I hope everyone is well. My plea for 2023 to sort it's shit out hasn't really gone to plan so far, albeit things are beginning to look a bit brighter as we leave February behind (or F***y February as I have affectionately coined it this year). Just after our last update we received the … Continue reading “Pretty good odds” to prevent the one armed man. →

lifeofrileysfa Uncategorized 3 Comments March 8, 2023 5 Minutes
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Pox, Plague and Purple Legs

HAPPY NEW YEAR FROM THE RILEYS!!! We hope you had the most magical of times. We did. We had one of the loveliest Christmas's I think we've ever had. It was full to the brim with smiles, laughter, family, some questionable knock off Amaretto and lot's and lot's of love. Before you all start being … Continue reading Pox, Plague and Purple Legs →

lifeofrileysfa Uncategorized 1 Comment January 4, 2023January 4, 2023 7 Minutes

Child In Need – no indeed.

Well, in the immortal words of Ozzy and Kelly Osborne - we're going through changes. Mainly the new giant chuff-off hole in the middle of our hallway: Giant chuff-off hole. So, you know, that's fun. Especially when you have a toddler who thinks he's in the SAS. Ant Middleton could learn a thing or two … Continue reading Child In Need – no indeed. →

lifeofrileysfa Uncategorized 2 Comments August 17, 2022August 17, 2022 6 Minutes

Teenage kicks and Positive Pants

Holy moly I've been slacking on the updates recently! I was convinced that my last post was in May... turns out it was in February and that is not the same as May... So, strap yourselves in for a catch up of epic proportions! Firstly, WE GOT ON A PLANE AND WENT ON HOLIDAY. For … Continue reading Teenage kicks and Positive Pants →

lifeofrileysfa Uncategorized 1 Comment July 6, 2022July 6, 2022 7 Minutes

60 degrees too far.

Hello, and 'Happy New Year'! (I'm aware that I'm about 37 days late with that one, but the sentiment is there) Since our last update, a fair bit has happened. Mainly, to our house... and to the retinas of our neighbours as they have had 3 months worth of pyjama clad cooking in the garage … Continue reading 60 degrees too far. →

lifeofrileysfa Uncategorized 1 Comment February 6, 2022 5 Minutes

The sun always rises in the morning.

It's been a very VERY long time since our last update, and for that I (as head writer of this here site) must humbly apologise. The reason for this has been two fold: Life has been absolutely CHUFFING MENTAL of late In all honesty, I've really been struggling recently It all started towards the end … Continue reading The sun always rises in the morning. →

lifeofrileysfa Uncategorized 2 Comments October 24, 2021October 25, 2021 10 Minutes

Inspiration and Realisation.

If you follow our social media, you will have seen that T absolutely SMASHED his '28 Miles in 28 Days' challenge. He wobbled, walked and wheeled a mile every single day in February. He was out in every possible type of weather imaginable - wind (practically a hurricane one day), rain (biblical), sunshine (that one … Continue reading Inspiration and Realisation. →

lifeofrileysfa Uncategorized 1 Comment May 2, 2021 5 Minutes

This one, is for Sir Tom.

Happy New Year!! ... and also, Merry Christmas? I hope yours was as lovely as ours. I managed to get one picture of the boys together... ...and Baby Riley legitimately looks like he wants to punch someone in the face. Look at that mush! I think maybe he is sick of me being his personal … Continue reading This one, is for Sir Tom. →

lifeofrileysfa Uncategorized Leave a comment February 4, 2021February 5, 2021 5 Minutes

Always together, never alone.

Evening all! I thought it was about time I wrote a bit of an update on how things are, and more specifically, how things are medically for T at the moment. It's been a funny old time, trying to navigate serious medical conditions, when no-one wants to see you for appointments. And, to be fair, … Continue reading Always together, never alone. →

lifeofrileysfa Uncategorized 1 Comment December 11, 2020December 11, 2020 6 Minutes

Ding Ding! Round 2020

Just when you thought 2020 couldn't get any worse, BOOM! Lockdown 2.0, and Sean Connery taken from us (RIP Sir Sean). What a bloody crackers year this has become. Since our last update, we've had a fair few developments in old Family Riley. The first being that T has now started his new Secondary School! … Continue reading Ding Ding! Round 2020 →

lifeofrileysfa Uncategorized 1 Comment November 9, 2020 8 Minutes

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