So today marked my first solo venture out with T and the Mean Machine. I have been a little worried about this. Nothing to do with T as such; more my confidence and coping (driving) abilities with our new 4 wheeled friend. But I really really wanted today to go well for us both. Now, … Continue reading Bumps in the road… or loose paving slabs.
Labels do not define us.
Had a bit of a tough morning today. We've been to see T's Paediatric Neurology Nurse to discuss his progress. It is clear to all who know T, that he has deteriorated a bit of late. He has become much more unsteady on his feet and we now have the 'Mean Machine' (a.k.a the wheelchair) … Continue reading Labels do not define us.
The road to diagnosis…
I think all in all, we've been banging the diagnosis drum now for about 7 years. Even as a toddler, T was unsteady and clumsy. Not unusual for a toddler I guess, but when he woke up one morning at about 18 months old and couldn't place any weight on his legs, we knew something … Continue reading The road to diagnosis…
The start of the journey…
So, I'm a 33 year old mother of one, a wife and a secondary school teacher. I'm ambitious, love to laugh and fighting a constant battle between wanting to look like the 6th member of Girls Aloud, and needing carbohydrates and wine. Not gonna lie, the carbs and wine win 98% of the time. In … Continue reading The start of the journey…
The Life of Riley's 