Hello, and 'Happy New Year'! (I'm aware that I'm about 37 days late with that one, but the sentiment is there) Since our last update, a fair bit has happened. Mainly, to our house... and to the retinas of our neighbours as they have had 3 months worth of pyjama clad cooking in the garage … Continue reading 60 degrees too far.
Tag: ataxia
The sun always rises in the morning.
It's been a very VERY long time since our last update, and for that I (as head writer of this here site) must humbly apologise. The reason for this has been two fold: Life has been absolutely CHUFFING MENTAL of late In all honesty, I've really been struggling recently It all started towards the end … Continue reading The sun always rises in the morning.
Ding Ding! Round 2020
Just when you thought 2020 couldn't get any worse, BOOM! Lockdown 2.0, and Sean Connery taken from us (RIP Sir Sean). What a bloody crackers year this has become. Since our last update, we've had a fair few developments in old Family Riley. The first being that T has now started his new Secondary School! … Continue reading Ding Ding! Round 2020
The start of a new road… not to Debenhams.
Strap yourselves in Ladies and Gents, this is gonna be a long one! Over 2 months since our last update. I didn't actually realise that much time had passed... but 'time' seems to have taken on new meaning since Covid hit. One minute I'm in lockdown eating Easter eggs, then I blinked, and now its … Continue reading The start of a new road… not to Debenhams.
Carol Vorderman is my hero, but a fall can derail your day.
We sacked off home schooling today. Sorry to T’s teachers who will read this 😬 The day started well. Bit of Maths Factor (thank you Carol Vorderman you absolute Goddess and maths legend) and T completed a new topic. But, he then stood up and had a nasty fall in his room... which resulted in … Continue reading Carol Vorderman is my hero, but a fall can derail your day.
Walking a new road under a cloud.
It's been a bit of an up and down few weeks in the old Life of Rileys. This week has seen a few dark days. This happens occasionally, when it feels like everything just gets a little bit much. People often comment to myself and J that we deal with things exceptionally well. Truth is, … Continue reading Walking a new road under a cloud.
Disordered Not Drunk
Happy September 25th! Today is International Ataxia Awareness Day - aka the PERFECT day for a new blog post! As you will remember, if you read my previous blog post, I - the Walrus - was waiting for the impending (LATE) arrival of Baby Riley. And, if you follow our social media pages on Facebook … Continue reading Disordered Not Drunk
What do you follow – the heart or the head?
Well I am currently sat in the most cross-seasonal outfit ever (autumn dress with summer sandals for anyone interested), and realised that its been quite a while since our last update. So I thought I would remedy that. We've had a relatively quiet summer holidays so far - the impending arrival of mini Riley (who … Continue reading What do you follow – the heart or the head?
A wheelie emotional farewell…
Well. This week has been one of high emotion for young Mr T. On Monday we went for a wheelchair review, as the old Mean Machine is now almost contorting his newly elongated frame (seriously, he looks like Mr Fantastic from the Fantastic 4 nowadays - he's SO TALL). He has a slight curvature of … Continue reading A wheelie emotional farewell…
#trapthetinkle … and Gandalf.
I didn't actually realise how long it had been since our last update! In the space of the near 2 months since my last post, T has grown about 7000 inches in height, and also appears to have swallowed an old wise man. He has become... profound. He has all the wisdom of an owl, … Continue reading #trapthetinkle … and Gandalf.
The Life of Riley's 