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The Life of Riley's

Our journey with Friedreichs Ataxia

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Tag: ataxiaawareness

Black Thursday.

This week has seen T have his first major emotional reaction to his medical conditions. As a family, we have had many emotional responses to the ever unfolding events, however, this has been the first time it seems to have significantly hit T. And hit him it did. Like a HGV. We were getting ready … Continue reading Black Thursday. →

lifeofrileysfa Uncategorized 2 Comments September 30, 2018September 30, 2018 6 Minutes

Home Improvements

So its been all change in the Riley household this week; and I don't mean with us as a family, I literally mean the house itself. Up until 5 years ago, we seemed to move every year or so for one reason or another. We were in the wrong city for my career, our landlord … Continue reading Home Improvements →

lifeofrileysfa Uncategorized 2 Comments September 16, 2018 4 Minutes

Just put butter on it. Put butter on EVERYTHING.

I thought I was going to end up writing this live from Ward 130 today; but luckily that is not the case. Just my living room as normal. Which, looking around it, could do with a hoover. T has had a rough few weeks on the whole. His symptoms have taken a bit of a … Continue reading Just put butter on it. Put butter on EVERYTHING. →

lifeofrileysfa Uncategorized 4 Comments September 6, 2018September 6, 2018 4 Minutes

Bouncy Castles do not make stable walkways.

Today, I feel like I made a somewhat epic parenting fail. A few weeks ago I noticed (on the source of all knowledge - Facebook) that a new inflatable park was opening close by. Now T loves a bounce. He is a firm fan of a trampoline park, even if he can't bounce for quite … Continue reading Bouncy Castles do not make stable walkways. →

lifeofrileysfa Uncategorized 2 Comments August 30, 2018August 31, 2018 3 Minutes

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