Hello, and 'Happy New Year'! (I'm aware that I'm about 37 days late with that one, but the sentiment is there) Since our last update, a fair bit has happened. Mainly, to our house... and to the retinas of our neighbours as they have had 3 months worth of pyjama clad cooking in the garage … Continue reading 60 degrees too far.
Tag: friedreichsataxia
The sun always rises in the morning.
It's been a very VERY long time since our last update, and for that I (as head writer of this here site) must humbly apologise. The reason for this has been two fold: Life has been absolutely CHUFFING MENTAL of late In all honesty, I've really been struggling recently It all started towards the end … Continue reading The sun always rises in the morning.
Ding Ding! Round 2020
Just when you thought 2020 couldn't get any worse, BOOM! Lockdown 2.0, and Sean Connery taken from us (RIP Sir Sean). What a bloody crackers year this has become. Since our last update, we've had a fair few developments in old Family Riley. The first being that T has now started his new Secondary School! … Continue reading Ding Ding! Round 2020
The start of a new road… not to Debenhams.
Strap yourselves in Ladies and Gents, this is gonna be a long one! Over 2 months since our last update. I didn't actually realise that much time had passed... but 'time' seems to have taken on new meaning since Covid hit. One minute I'm in lockdown eating Easter eggs, then I blinked, and now its … Continue reading The start of a new road… not to Debenhams.
Carol Vorderman is my hero, but a fall can derail your day.
We sacked off home schooling today. Sorry to T’s teachers who will read this 😬 The day started well. Bit of Maths Factor (thank you Carol Vorderman you absolute Goddess and maths legend) and T completed a new topic. But, he then stood up and had a nasty fall in his room... which resulted in … Continue reading Carol Vorderman is my hero, but a fall can derail your day.
It is what it is.
HAPPY NEW YEAR! - I'm aware that we are very late to the party here, but it feels like we haven't stopped these past few months. Happy Christmas too! Totally didn't realise it had been so long since our last update... heres a festive picture to make up for our lack of content! Hope everyone … Continue reading It is what it is.
Disordered Not Drunk
Happy September 25th! Today is International Ataxia Awareness Day - aka the PERFECT day for a new blog post! As you will remember, if you read my previous blog post, I - the Walrus - was waiting for the impending (LATE) arrival of Baby Riley. And, if you follow our social media pages on Facebook … Continue reading Disordered Not Drunk
What do you follow – the heart or the head?
Well I am currently sat in the most cross-seasonal outfit ever (autumn dress with summer sandals for anyone interested), and realised that its been quite a while since our last update. So I thought I would remedy that. We've had a relatively quiet summer holidays so far - the impending arrival of mini Riley (who … Continue reading What do you follow – the heart or the head?
A wheelie emotional farewell…
Well. This week has been one of high emotion for young Mr T. On Monday we went for a wheelchair review, as the old Mean Machine is now almost contorting his newly elongated frame (seriously, he looks like Mr Fantastic from the Fantastic 4 nowadays - he's SO TALL). He has a slight curvature of … Continue reading A wheelie emotional farewell…
Hopes, dreams and wheelies.
This week I had a meeting at T's school to review his school support plan. It was quite a large meeting: myself, Miss E - the lovely school SENCO, an Assistant SENCO (who was equally lovely but I have forgotten her name... if you are reading this I apologise. You really are wonderful, but I … Continue reading Hopes, dreams and wheelies.
The Life of Riley's 