This week has seen T have his first major emotional reaction to his medical conditions. As a family, we have had many emotional responses to the ever unfolding events, however, this has been the first time it seems to have significantly hit T. And hit him it did. Like a HGV. We were getting ready … Continue reading Black Thursday.
Today, I feel like I made a somewhat epic parenting fail. A few weeks ago I noticed (on the source of all knowledge - Facebook) that a new inflatable park was opening close by. Now T loves a bounce. He is a firm fan of a trampoline park, even if he can't bounce for quite … Continue reading Bouncy Castles do not make stable walkways.
Had a bit of a tough morning today. We've been to see T's Paediatric Neurology Nurse to discuss his progress. It is clear to all who know T, that he has deteriorated a bit of late. He has become much more unsteady on his feet and we now have the 'Mean Machine' (a.k.a the wheelchair) … Continue reading Labels do not define us.