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Our journey with Friedreichs Ataxia

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Tag: running

Walking a new road under a cloud.

It's been a bit of an up and down few weeks in the old Life of Rileys. This week has seen a few dark days. This happens occasionally, when it feels like everything just gets a little bit much. People often comment to myself and J that we deal with things exceptionally well. Truth is, … Continue reading Walking a new road under a cloud. →

lifeofrileysfa Uncategorized 3 Comments October 23, 2019 5 Minutes

A wheelie emotional farewell…

Well. This week has been one of high emotion for young Mr T. On Monday we went for a wheelchair review, as the old Mean Machine is now almost contorting his newly elongated frame (seriously, he looks like Mr Fantastic from the Fantastic 4 nowadays - he's SO TALL). He has a slight curvature of … Continue reading A wheelie emotional farewell… →

lifeofrileysfa Uncategorized Leave a comment June 16, 2019 6 Minutes
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