I didn't actually realise how long it had been since our last update! In the space of the near 2 months since my last post, T has grown about 7000 inches in height, and also appears to have swallowed an old wise man. He has become... profound. He has all the wisdom of an owl, … Continue reading #trapthetinkle … and Gandalf.
Its been a busy couple of months in the Riley household! I've had my show on at school which means that between growing this teeny tiny human in my uterus, rehearsing at school and snuggling my family, I've basically just slept for the remainder of the time... hence the lack of posts! However, I am … Continue reading Funding, Q-Shaggys, T Obama and… Penguins.
Yep. 2019 is gonna be busy year for us! 3 are becoming 4. SURPRISE! We are very excited... now that we have overcome the shock. We have always been very honest about our journey; the good, the bad, and the ugly (crying). So we thought we would share our little snippet of news and shed … Continue reading A Christmas Miracle.
Happy New Year! Apologies for the lack of updates, we spent the Christmas period cocooned in our little family unit and then have since been trying to get back into the swing of things... and trying to fit into our clothes following a few too many Christmas carbs... Mr T is doing well. He was … Continue reading 2019, Fundraising and Marvin the Monitor
We had quite a busy Saturday planned yesterday: swimming, hair cut for T (as he looks like Wurzel Gumage), parcel pick ups, visit to Great-Grandma and finishing with a family take-away and the Strictly Final (natch). T had his swimming lesson as normal. His wonderful teacher checked how his week and general well-being was, as … Continue reading ‘Un-Super Saturday’
This week I had a meeting at T's school to review his school support plan. It was quite a large meeting: myself, Miss E - the lovely school SENCO, an Assistant SENCO (who was equally lovely but I have forgotten her name... if you are reading this I apologise. You really are wonderful, but I … Continue reading Hopes, dreams and wheelies.
Well, we've had a relatively quiet few weeks in Riley Land in terms of appointments and specialists. We are currently in that lovely place named 'Limbo'. We are still awaiting the results of T's detailed heart scan and still also awaiting his appointment to come through for the Ataxia clinic at Great Ormond Street. In … Continue reading No wishes needed… and toilets in jail.