Well it has to be said that this is a blog post I never thought I'd be writing. Bloody Coronavirus sneaking up on the World like a stealth ninja. In all seriousness though, we are literally heading into the unknown (feel free to sing in a Frozen 2 esque fashion) and I don't think it … Continue reading Come On Eileen (Covid19)
HAPPY NEW YEAR! - I'm aware that we are very late to the party here, but it feels like we haven't stopped these past few months. Happy Christmas too! Totally didn't realise it had been so long since our last update... heres a festive picture to make up for our lack of content! Hope everyone … Continue reading It is what it is.
It's been a bit of an up and down few weeks in the old Life of Rileys. This week has seen a few dark days. This happens occasionally, when it feels like everything just gets a little bit much. People often comment to myself and J that we deal with things exceptionally well. Truth is, … Continue reading Walking a new road under a cloud.
Happy September 25th! Today is International Ataxia Awareness Day - aka the PERFECT day for a new blog post! As you will remember, if you read my previous blog post, I - the Walrus - was waiting for the impending (LATE) arrival of Baby Riley. And, if you follow our social media pages on Facebook … Continue reading Disordered Not Drunk
Well I am currently sat in the most cross-seasonal outfit ever (autumn dress with summer sandals for anyone interested), and realised that its been quite a while since our last update. So I thought I would remedy that. We've had a relatively quiet summer holidays so far - the impending arrival of mini Riley (who … Continue reading What do you follow – the heart or the head?
Well. This week has been one of high emotion for young Mr T. On Monday we went for a wheelchair review, as the old Mean Machine is now almost contorting his newly elongated frame (seriously, he looks like Mr Fantastic from the Fantastic 4 nowadays - he's SO TALL). He has a slight curvature of … Continue reading A wheelie emotional farewell…
I didn't actually realise how long it had been since our last update! In the space of the near 2 months since my last post, T has grown about 7000 inches in height, and also appears to have swallowed an old wise man. He has become... profound. He has all the wisdom of an owl, … Continue reading #trapthetinkle … and Gandalf.
Its been a busy couple of months in the Riley household! I've had my show on at school which means that between growing this teeny tiny human in my uterus, rehearsing at school and snuggling my family, I've basically just slept for the remainder of the time... hence the lack of posts! However, I am … Continue reading Funding, Q-Shaggys, T Obama and… Penguins.
Yep. 2019 is gonna be busy year for us! 3 are becoming 4. SURPRISE! We are very excited... now that we have overcome the shock. We have always been very honest about our journey; the good, the bad, and the ugly (crying). So we thought we would share our little snippet of news and shed … Continue reading A Christmas Miracle.
Happy New Year! Apologies for the lack of updates, we spent the Christmas period cocooned in our little family unit and then have since been trying to get back into the swing of things... and trying to fit into our clothes following a few too many Christmas carbs... Mr T is doing well. He was … Continue reading 2019, Fundraising and Marvin the Monitor